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Muscular dystrophy clinic

Muscular dystrophy clinic

Muscular dystrophy clinic

The Muscular Dystrophy Association (MDA) has affiliated with Shriners Hospitals for Children — Chicago in a clinical partnership to provide care for children with neuromuscular diseases. MDA maintains a network of 200 specialized clinics across the United States and in Puerto Rico. This monthly clinic provides comprehensive care from pediatric neurologists, orthopaedic surgeons and pediatric rehabilitation specialists. Patients may also see the nurse, nurse practitioner; physical, occupational and speech therapists; psychologist, RN care coordinator, social worker care coordinator and clinical dietician during the appointment. On the day of the visit, we have an expert on hand to make adjustments to wheeled mobility devices and orthotists to help with braces.

MDA and the Chicago Shriners Hospital care for the patient and family as a whole through compassionate and knowledgeable staff. We provide support and guidance to individuals coping with muscle disease. Our partnership with MDA provides us access to an MDA health service coordinator on clinic days to answer questions, distribute MDA educational materials, coordinate any MDA services you may require and assist with community resource referrals.

Muscular dystrophy conditions treated include:

  • Becker muscular dystrophy
  • Central core muscular dystrophy
  • Centronuclear myopathy
  • Charcot-Marie-Tooth disease (peroneal muscular atrophy)
  • Congenital mytonic dystrophy
  • Duchenne’s muscular dystrophy
  • Epidermolysis bullosa simplex with muscular dystrophy
  • Facioscaputohumeral muscular dystrophy
  • Friedreich’s ataxia
  • Limb girdle muscular dystrophy
  • Megaconial type muscular dystrophy
  • Merosin deficient congenital muscular dystrophy
  • Miyoshi muscular dystrophy
  • Myotonic muscular dystrophy
  • Myotubular myopathy
  • Nemaline myopathy
  • Spinal muscular atrophy
   
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