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news News Tuesday, March 17, 2020 Tuesday, March 17, 2020 12:27 PM - Tuesday, March 17, 2020 12:27 PM

SCI survey for patients

SCI survey for patients

The spinal cord injury (SCI) team at Shriners Hospitals for Children — Chicago has developed a new quality of life survey for children with spinal cord injury and young adults with SCI, the PedsQL™ SCI Module. The team needs the help of patients who have been treated for an SCI in the Shriners Hospitals for Children system to validate the PedsQL  by testing it. They are asking children with a spinal cord injury (ages 8-18 years), young adults with SCI (ages 19-25 years) who were injured before age 19, and parents of children with SCI (ages 2-25 years) to test out the survey on a secure internet survey site.

The survey will take about 20 minutes to complete. Some questions may be repetitive but we ask that all items be answered as best applies to you (or your child). This is an anonymous survey. We only ask your age, gender, level of injury and ZIP code.

We very much appreciate your participation in validating this survey, which will provide much needed information on quality of life specific to living with a spinal cord injury in children and young adults.

The paper describing the development of the PedsQL™ SCI Module has recently been accepted for publication in the scientific journal Spinal Cord. This study is funded by the Craig H. Neilsen Foundation.

For questions or more information, email Miriam Hwang, M.D., Ph.D.