Neuromuscular conditions are typically complex and vary in severity. For conditions like cerebral palsy and spina bifida, treatment involves more than just the orthopaedic ramifications. The St. Louis Shriners Hospital also provides a multidisciplinary (neurology, urology, pediatrics) approach to the complex medical needs of these patients. Because we strive to coordinate care for each visit to make the most of your time with us, we do our best to provide clinics and care that is collaborative and comprehensive.
Cerebral palsy, also known as static encephalopathy, is a condition affecting muscle tone, movement and coordination. It is the most common disability that occurs before, during or immediately after the birth of children and is related to a lack of oxygen to the brain. Learn more about how our team cares for children with cerebral palsy.
Charcot-Marie-Tooth is a group of disorders that affect the peripheral nerves that carry messages between the brain and muscles throughout the body. Treatment may include physical and occupational therapy, braces or splints. Surgery may be necessary for severe foot deformities.
Dermatomyositis is a rare autoimmune disorder that inflames healthy muscle tissue causing weakness. Common treatment may include physical therapy, speech therapy, medication and surgery.
Ehlers-Danlos syndrome is a group of inherited disorders that weaken connective tissues. Treatment may include medication and physical therapy. Although it is rarely necessary, surgery may be included in treatment of Ehlers-Danlos syndrome.
Lupus is a chronic autoimmune disease where the immune system attacks the tissues and organs. Lupus is treated with medication.
Marfan syndrome is a rare genetic disorder that affects the connective tissues. Abnormalities in the connective tissues in these children will show themselves with the child having an abnormal enlargement of the aortic root of the heart; dislocated lenses of the eyes; and a tall, lanky body with increased joint mobility; scoliosis; long, flat feet; and long fingers. These conditions may vary among individuals diagnosed with this condition, even within a family.
Scleroderma is a condition that includes chronic hardening and tightening of the skin and connective tissue. Treatment may include medication and physical or occupational therapy. Surgery may be necessary for complications caused by scleroderma.
Spina bifida, also known as myelomeningocele, is a congenital defect of the spine where the spinal cord and its meninges are exposed through a gap in the backbone. The initial care to address the exposed spinal cord and fluid on the brain is provided by a neurosurgeon at or near the time of birth. Orthopaedic evaluation and treatment for children with spina bifida begins after the neurosurgical intervention. Orthopaedic treatment for spina bifida includes physical therapy and occupational therapy, crutches and/or custom orthoses (braces) made in-house. At Shriners Hospitals for Children — St. Louis, we practice a multidisciplinary team approach, including assistive technology and rehabilitation care, neurology, orthopaedics, orthotics (bracing) and urology services. All services are conveniently provided during the specialty clinic held once a month so that families can see all specialists in one visit without leaving the building. Learn more about how our team cares for children with spina bifida.
Spinal muscular atrophy is a group of disorders of the motor cells in the spinal cord and lower brainstem, which leads to muscle weakness and atrophy. This condition is typically inherited. Treatment for spinal muscular atrophy may include physical therapy, respiratory care, splints, spinal orthoses or surgery.