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news News Friday, February 15, 2019 Friday, February 15, 2019 4:18 PM - Friday, February 15, 2019 4:18 PM

A family finds answers

Colton receives life-changing care at the Portland Shriners Hospital

A family finds answers

When Colton was born, his parents noticed that his wrists and ankles were larger than expected, and as he grew, his legs were curved and didn’t grow straight. Colton’s mom, Heather, was so worried that she began taking Colton to various specialists who all told her not to worry, that he was a growing baby and that his legs were normal. But Heather wouldn’t give up until she found an answer. Recommended by her grandfather, Heather took Colton to the Portland Shriners Hospital and finally found the answer she had been looking for.

After seeking care at Shriners Hospitals for Children — Portland, Colton was diagnosed with the rare condition of x-linked hypophosphatemia (XLH) which results in abnormal bone development, bowed legs, abnormal gait and a slowing growth rate. Heather can easily pinpoint the time that she knew Colton’s life would change, and that was after meeting Jeremy Bauer, M.D.

Dr. Bauer performed a leg-lengthening surgery on Colton to facilitate the growth of his left leg. Although this treatment can be emotionally and physically taxing, Dr. Bauer was confident in Colton’s determination. “Colton was part of the plan from the very start,” said Dr. Bauer. ”He pushed through the difficult aspects and came out with an excellent result because of his effort and strong character.” 

For Colton, the care he received at the Portland Shriners Hospital was life-changing. “When I first met Dr. Bauer, he gave me hope that he could help improve my condition,” said Colton. “But then I had surgery, and after I healed, I saw that he didn’t just give me hope – he helped make it a reality! Not only did Dr. Bauer give me a better leg to stand on, but he also gave me more confidence to walk down the halls at school, dance and ride motorcycles. To him, I will be forever grateful.”

Currently, Colton continues to receive physical therapy at the Portland Shriners Hospital, and he enjoys physical activities such as riding motorcycles and BMX, riding a scooter and skateboarding. In terms of his future, Colton has it all figured out. He plans to go to Oregon State University to get his degree in engineering, where he would like to work with schools, parks and recreational areas across the country to make it mandatory to have play equipment adapted for children with all abilities. Thanks for being an inspiration, Colton!