At Shriners Hospitals for Children, the health and safety of our patients, families, volunteers and staff is our top priority. With the rapidly evolving situation regarding coronavirus disease 2019 (COVID-19), we are closely monitoring updates and alerts from local health departments and the Centers for Disease Control and Prevention (CDC), and are actively following their recommendations.

Please note that Shriners Hospitals for Children does not administer COVID-19 testing or treatment at this time. If your child has an upcoming appointment and you or your child are exhibiting a cough, fever, chills, shortness of breath or flu like symptoms, please contact your local Shriners Hospitals for Children location to reschedule the appointment.

What to expect at Shriners Hospitals for Children — Salt Lake City.

For the latest updates about COVID-19, please visit the CDC website.

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Cornelia de Lange syndrome clinic

Cornelia de Lange syndrome clinic

The staff at Shriners Hospitals for Children — Salt Lake City recognizes the difficulties families may face when caring for children with complex conditions. We strive to ease each family’s experience by providing care by compassionate, multi-skilled health care professionals, all in one place on one day.

Cornelia de Lange syndrome clinic

Cornelia de Lange syndrome (CdLS) is a genetic disorder present from birth, but not always diagnosed at birth. It causes a range of physical, cognitive and medical challenges, and affects both genders equally. CdLS is seen in all races and ethnic backgrounds. Common symptoms include failure to thrive, developmental delay, limb abnormalities and autism. The occurrence of CdLS is estimated to be one in 10,000 live births.

The Cornelia de Lange syndrome clinic at Shriners Hospitals for Children — Salt Lake City is an annual clinic held in March. Patients have access to a collaborative team of specialists with expertise in orthopaedics, developmental pediatrics, neurology, gastroenterology, ear nose and throat, genetics, social work, physical and occupational therapy, dental care and nutrition. Additionally, parent representatives from the CdLS Foundation are available to meet with families before and after the clinic.

Our support services are also available to our patients, as determined by the medical team:

Meet our specialized staff:

Learn more about Shriners Hospitals for Children — Salt Lake City multidisciplinary clinics.