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news News Tuesday, August 7, 2018 Tuesday, August 7, 2018 8:00 AM - Tuesday, August 7, 2018 8:00 AM

Meet Kira Krzysztof

Meet Kira Krzysztof
Kira and a Shriners Hospitals for Children — Springfield staff member

Kira Krzysztof, 14, a patient at Shriners Hospitals for Children — Springfield, from Pittsfield, Massachusetts, will have the experience of a lifetime when she represents the hospital in November at the Shriners Hospitals for Children Open, an official PGA TOUR event in Las Vegas.

Kira was chosen as one of 22 patient ambassadors throughout the country who will represent their local Shriners Hospital at the tournament. They will serve as standard bearers, carrying the scores of professional golfers as they compete in the tournament. It is a rare “inside the ropes” opportunity at a PGA TOUR event, and for Kira, a chance to share how Shriners Hospitals for Children — Springfield has helped transform her life.

As part of her participation in the tournament, Kira’s story and photo will appear in the tournament program, and her information will be shared with the Golf Channel, which will televise the tournament nationally, to be used during the broadcast. The broadcast reaches over 700 million homes across 240 countries worldwide.

About Kira

Kira Krzysztof has been a proud patient of Shriners Hospitals for Children — Springfield since 2005. Kira was born with a rare, complex birth disorder called lipomyelomeningocele, a form of spina bifida that has required her to undergo a number of surgeries and procedures.

Kira has had six major surgeries, including back surgery and foot reconstruction, among others. Another surgery required the untethering (untangling) of nerves that had roped around her spinal cord, which had led to her having no feeling in her left leg and foot from her knee down. She now wears a brace for support when walking.

Kira currently goes to the clinic to see Philip Mack, M.D., from the orthopaedic department and also Eric Nelson, M.D., in the urology department. Cindy Simis takes care of Kira’s orthotic needs and contributes toward her special care.

Kira resides with her mother and stepfather, and frequently spends time with her father in New Hampshire. She keeps busy doing extracurricular activities, including practicing yoga and learning how to cook. Her other passions are fashion, singing karaoke, dancing (tap and jazz) and socializing with friends. With all that she has been through, Kira has a positive and upbeat personality, and has always been a great role model for her peers.

The limited use of her leg has never kept Kira from achieving anything she has put her mind to. She loves her experiences at the Springfield Shriners Hospital and collects aluminum can tabs to donate back to the hospital (as part of a Shriners Hospitals for Children fundraising program). She also encourages others to donate. This experience has made Kira a stronger person, and she is her family and friends' role model and hero.

Donate today to help us give Kira the experience of a lifetime at the Shriners Hospitals for Children Open this November in Las Vegas, Nevada!

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