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news Patient Story Thursday, July 27, 2017 Wednesday, November 8, 2017 7:08 PM - Wednesday, November 8, 2017 7:08 PM

Florida girl with rare auto-immune condition now walks with pride and hope

Marina was born with STING-associated vasculopathy with onset in infancy (SAVI)

When the missionary first held the baby in a Ukraine orphanage, she was told not to get too attached. "She's not going to make it," a worker said. But Marina, who was born with a rare auto-immune condition, not only survived but thrives as a middle schooler, thanks to her parents' love and expert medical care.

Prosthetic legs from Shriners Hospitals for Children in Boston and Tampa have allowed Marina to walk, dance and be tall enough for all the rides at Walt Disney World.

Read more about how Shriners Hospitals for Children provided life-changing care for this special girl in the Tampa Bay Times.

Marina gets the beauty treatment.

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